Privacy Policy

  1. This Privacy Policy is Charlies Foundation for Research (‘CFFR’) official online privacy policy and it applies to all personal information collected by CFFR. In this policy, we explain how and why we collect your personal information, how we use it, and what controls you have over our use of it.
  2. CFFR is committed to complying with Commonwealth legislation governing privacy of personal information by businesses and to protecting and safeguarding your privacy when you deal with us.

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Collection of information

  1. We consider some information provided to us by clients, customers, contractors and other third parties might be private or personal. Without these details, we would not be able to carry on our business and provide our services to you. We will only collect such personal information if it is necessary for one of our functions or activities. Such functions include:

3.1 providing clients with the products and services that they request;

3.2 providing relevant information to contractors to assist CFFR to provide the products and services that the client requests;

3.3 complying with any legal obligations, including dealing with local authorities; and

3.4 maintaining CFFR’s client relationships.

  1. CFFR collects personal information including, but not limited to, name, address, date of birth, gender, marital status, occupation, contact details and limited financial information.
  1. In particular, personal information is collected from people in the following situations by CFFR:

5.1 If you contact CFFR, we may keep a record of that correspondence;

5.2 When you submit your e-mail address to our website mailing list;

  1. At or before the time the personal information is collected by us we will take reasonable steps to ensure that you are made aware of who we are, the fact that you are able to gain access to the information held about you, the purpose of the collection, the type(s) of organisations to which we usually disclose the information collected about you, any laws requiring the collection of the information and the main consequences for you if all or part of the information is not collected.

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Use of information collected and disclosure of personal information to others

  1. We may use or disclose personal information held about an individual for the primary purpose for which it is collected (eg. provision of our services, including administration of our services, notification to you about changes to our services, record-keeping following termination of our services to you, or technical maintenance.

We may also use such information for a purpose related to the primary purpose of collection and where it would reasonably be expected by you that we would use the information in such a way. We only disclose this information to persons outside our business in the circumstances set out in this policy or as otherwise notified to you at the time of collection of the information.

  1. In addition we are permitted to use or disclose personal information held about you:

8.1 Where you have consented to the use or disclosure;

8.2 Where we reasonably believe that the use or disclosure is necessary to lessen or prevent a serious, immediate threat to someone’s health or safety or the public’s health or safety;

8.3 Where we reasonably suspect that unlawful activity has been, is being or may be engaged in and the use or disclosure is a necessary part of our investigation or in reporting the matter to the relevant authorities;

8.4 Where such use or disclosure is required under or authorised by law (for example, to comply with a subpoena, a warrant or other order of a court or legal process);

8.5 Where we reasonably believe that the use or disclosure is reasonably necessary for prevention, investigation, prosecution and punishment of crimes or wrongdoings or the preparation for, conduct of, proceedings before any court or tribunal or the implementation of the orders of a court or tribunal by or on behalf of an enforcement body.

  1. CFFR may provide personal information to its solicitors, and to any related company entities.

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Links

  1. Our website may contain links to other websites and those third party websites may collect personal information about you. We are not responsible for the privacy practices of other businesses or the content of websites that are linked to our website. CFFR encourages users to be aware when they leave the site and to read the privacy statements of each and every website that collects personally identifiable information. If visitors do not want those companies to collect information about them, they should contact these companies directly.

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Security and storage

  1. CFFR places a great importance on the security of all information associated with our customers, clients and contractors. We have security measures in place to attempt to protect against the loss, misuse and alteration of personal information under our control.
  1. We de-identify or destroy personal information securely when no longer required by us.
  1. CFFR retains the information you provide to us including possibly your contact and credit card details to enable us to verify transactions and customer details and to retain adequate records for legal and accounting purposes. We hold this information on secure servers in controlled facilities.
  1. We only allow access to information stored within our computer systems by those entrusted with authority and computer network password sanctions.
  1. We cannot guarantee data transmission over the Internet to be 100 per cent secure. As a result, while we strive to protect users’ personal information, CFFR cannot ensure or warrant the security of any information transmitted to it or from its online products or services, and users do so at their own risk. Once CFFR receives your transmission, it makes every effort to ensure its security on its systems.
  1. Ultimately, you are solely responsible for keeping your passwords and/or account information secret. You should be careful and responsible whenever you are online.

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Complaints

  1. If you have a complaint about our Privacy Policy or the collection, use or safe disposal or destruction of your personal information, your complaint should be directed in the first instance to us at info@charliesfoundation.org.au
  1. We will investigate your complaint and attempt to resolve any breach that might have occurred in relation to the collection, use or destruction of personal information held by us about you in accordance with the Commonwealth Privacy legislation. If you are not satisfied with the outcome of this procedure then you may request that an independent person (usually the Commonwealth Privacy Officer) investigate your complaint.

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Transfer of information overseas

  1. Pursuant to the Australian Privacy Principles, we may transfer personal information we have collected about you to overseas recipients.

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Unsolicited personal information

28. In the event that CFFR received unsolicited personal information, CFFR will as soon as practicable, but only if it is lawful and reasonable to do so, destroy the information or ensure the information is de-identified

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Changes to Privacy Policy

  1. If CFFR decides to change its Privacy Policy, it will post changes on this Privacy Policy page so that users are always aware of what information CFFR collects, how it is used and the way in which information CFFR may disclose. As a result, please remember to refer back to this Privacy Policy regularly to review any amendments. We will post any new policy on our website at least thirty (30) days prior to its taking effect.

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Contacting us

  1. If you require further information regarding our Privacy Policy, please contact us at the following address: fundraising@charliesfoundation.org.au

Alternatively, our contact address is:

Charlies Foundation for Research
Sir Charles Gairdner Hospital

Watling Walk, Ground Floor

E Block

OR

PO Box 240

Nedlands WA 6909

T: (08) 6457 1079

  1. Should you wish to read more information on privacy legislation or the Australian Privacy Principles we recommend that you visit the Federal Privacy Commissioner’s website at http://www.oaic.gov.au/

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Acceptance

  1. You accept that your use of this site includes your acceptance of this Privacy Policy and the Terms of Use.

This Privacy Policy is effective from April 27 2018. All design and content shown on this website and in all other media including brochure format, shall remain the sole property of CFFR and shall not be copied in any format without express consent in writing from CFFR.

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